We went back to St. Mark today for his orthopedic follow-up with Dr. Martin.
His finger still looks horrendous; very bloody, and very swollen. The sutures were taken out, and the x-ray showed the finger healing properly.
Dr. Martin would not release Jeremy for work. Jeremy's flesh wound has not healed, and until it shows improvement he cannot return to Intsel. Not the best news.
Jeremy has another appointment scheduled for March 8th. We are really hoping for a work release at this time.
February 25, 2010
February 24, 2010
Best Invention Ever
Whoever decided to add a hammock to the baby tub should be canonized. It makes bath time less stressful, and so easy.
Thank you to MykeAnne, Michelle, and Erin for the amazing gift.
Madelynn is getting better with her dexterity. She holds her own binkie if we help her find it.
She fell asleep, and kept holding on to the binkie.
Thank you to MykeAnne, Michelle, and Erin for the amazing gift.Madelynn is getting better with her dexterity. She holds her own binkie if we help her find it.
She fell asleep, and kept holding on to the binkie.
February 23, 2010
Day 3
I keep trying to figure out how I am going to write blogs now that she is home. There aren't any real updates anymore. Mostly it's just me wanting to post the cutest pictures of the day. I haven't decided if I want to do this by a slide or not, but if I post an individual blog then there are going to be a ton.
I forgot to talk about her wellness check with Dr. Zarbock yesterday. He was encouraged to hear she smiles, and does most things a "normal" 2-month old would do. (We will be going by adjusted age for the next couple of years when it comes to developmental mile stones). She weighed in at 8 pounds 3 ounces. She is in the 5th percentile. He thinks the right side of her head is kind of flat, but I told him will grow her hair out, no biggie. We will return for her 6-month immunizations next month on the 26th.
Cute pictures of the day:
She was holding her rattle!
Onsie shout out to Grandma Jones.
She seems to really like her Play Place.
I forgot to talk about her wellness check with Dr. Zarbock yesterday. He was encouraged to hear she smiles, and does most things a "normal" 2-month old would do. (We will be going by adjusted age for the next couple of years when it comes to developmental mile stones). She weighed in at 8 pounds 3 ounces. She is in the 5th percentile. He thinks the right side of her head is kind of flat, but I told him will grow her hair out, no biggie. We will return for her 6-month immunizations next month on the 26th.
Cute pictures of the day:
She was holding her rattle!
She didn't nap for long much to my disappointment.
Onsie shout out to Grandma Jones.
She seems to really like her Play Place.
February 22, 2010
Home Sweet Home
Madelynn seemed a lot more at ease today.
We sang to her, did her bone density exercises, had her sit in her swing Grandma Myker and Grandpa Rick got her for Christmas, took her to see our new pediatrician, and gave her a bath.
Bath time. Now she smells like a baby, and not a hospital.
Noticed the TV.
Getting Ready For Bed.
We sang to her, did her bone density exercises, had her sit in her swing Grandma Myker and Grandpa Rick got her for Christmas, took her to see our new pediatrician, and gave her a bath.
Not quiet sure if she is ready for the swing, but she is too cute in it.
Tuckered out after the pediatrician visit.
Bath time. Now she smells like a baby, and not a hospital.
Noticed the TV.
Getting Ready For Bed.February 21, 2010
After 154 Days She Is Home
Getting Into Her Outfit
The Outfit
Second Guessing Coming Home
Madelynn is five months old, and has been taken home. Our apartment looks like a medical supply office, but we'll take it.
She seemed to be having a rough time falling to sleep. We vented the tube, which seemed to help, and then we wrapped her like a baby burrito. She finally fell asleep around 1 AM.
It turns out Madelynn likes to make noises when she sleeps. We kept waking up every 30 minutes or so. She gets medications every four hours, and we have to change out her formula about that often during the night when she is on continuous feeds. Waking up every 30 minutes helped stay on time, and not having the alarm go off.
As it is Maddie's oxygen monitor sometimes goes off, and it is so loud. I am sure the neighbors are upset over the beeping.
All in all it was not a horrendous night. We are so thankful to finally have her home, we will do whatever it takes to help her grow, and stay home.
February 16, 2010
Week Twenty-Two
Tuesday: The medical staff wants us to spend the night on Friday, and take her home on Saturday. We are really excited. Thankfully the only thing we have to do is clean the carpets. Everything else is ready for her arrival.
She is 7 1/2 pounds. Her hearing test is today.
*The medical staff informed us we probably won't be bringing her home on Saturday. Until we actually have her home, we won't be posting anything more they say about a homecoming date.
Friday: I left work early today to go to the hospital to get Jeremy and meet with the home-care equipment people. They gave us our supplies for tending to the g-tube site, and the pump we will need for bolus feedings. They want us to stay over on Sunday night to have nurses on hand if we need them while we are using the new equipment.
She passed her hearing test today (which Aunt Paula was happy to hear)! They want to see her again at 18 months.
They tried her on "real world" formula today. She apparently doesn't like the taste (I have no idea where her pickiness comes from). They want to try it a few more times before they try using another one.
She has nothing on her face. She has been on room air for almost a week. The nurses got confident enough they removed her brown holding dots today.
Madelynn is 19 1/2 inches long and weighs 7 pounds 11 ounces.
She is 7 1/2 pounds. Her hearing test is today.
*The medical staff informed us we probably won't be bringing her home on Saturday. Until we actually have her home, we won't be posting anything more they say about a homecoming date.
Friday: I left work early today to go to the hospital to get Jeremy and meet with the home-care equipment people. They gave us our supplies for tending to the g-tube site, and the pump we will need for bolus feedings. They want us to stay over on Sunday night to have nurses on hand if we need them while we are using the new equipment.
She passed her hearing test today (which Aunt Paula was happy to hear)! They want to see her again at 18 months.
They tried her on "real world" formula today. She apparently doesn't like the taste (I have no idea where her pickiness comes from). They want to try it a few more times before they try using another one.
She has nothing on her face. She has been on room air for almost a week. The nurses got confident enough they removed her brown holding dots today.
Madelynn is 19 1/2 inches long and weighs 7 pounds 11 ounces.
Another Day, Another Hurst In The Hospital...
This time it was Jeremy. While at work moving items with a crane, a piece of angle iron (around 300 pounds) dropped onto his left hand. His index finger took the brunt of everything. He was taken to a clinic which works with his company on Workers Comp. They took one look at it and sent him to St. Marks around 10 AM.
I arrived about ten minutes behind him. When I got there he was rocking back in forth in pain. We were taken back to the ER, and they examined the finger.
It took forever for them to order pain medication for him. They numbed it with lydacane first. When that didn't help, they ordered the morphine. The x-rays came back, and showed his finger to be broken in half. Surgery was necessary. They put his finger in a metal brace while we waited for the orthopedic surgeon to arrive.
He was sent to a room, and was taken into surgery around 3:30 PM.
He was out of surgery around 5 or so. He was brought back to his room around 6. The doctor came and told me Jeremy cannot return to work until after his check-up next Thursday. He had pins placed into his finger, and placed a plate.
The finished product:
We are so thankful he didn't lose his finger. This accident could have been a lot worse.
I arrived about ten minutes behind him. When I got there he was rocking back in forth in pain. We were taken back to the ER, and they examined the finger.
It took forever for them to order pain medication for him. They numbed it with lydacane first. When that didn't help, they ordered the morphine. The x-rays came back, and showed his finger to be broken in half. Surgery was necessary. They put his finger in a metal brace while we waited for the orthopedic surgeon to arrive.
He was sent to a room, and was taken into surgery around 3:30 PM.
He was out of surgery around 5 or so. He was brought back to his room around 6. The doctor came and told me Jeremy cannot return to work until after his check-up next Thursday. He had pins placed into his finger, and placed a plate.
The finished product:
We are so thankful he didn't lose his finger. This accident could have been a lot worse.
February 9, 2010
February 8, 2010
Week Twenty One: February 8-14
Monday: No changes today. Her nurse today said only two babies have ever made her want to have children and Madelynn is one of them. I thought that was a nice thing to say.
Tuesday: Maddie is getting introduced to the bottle again. She has been on full feeds on a continuous flow for a couple of days now. They will start to compress her feeding time so her body will start knowing day feedings and night feeding. They will start with 23 hours of continuous flow with one hour off. Then 22 hours with 2 off, etc. She needs to get to the point where she is only on continuous feeds at night. Then we can do the car seat test, and hopefully home is the next step after that.
Thursday: Maddie is 7 pounds 2 ounces! Still no plans for a homecoming.
Saturday: Madelynn did really well on her swallow study. They are encouraged by what they see. They have reduced the amount of thickener in her formula. Her feeds are over a two hour period. We need to get her to a half hour. I brought in her car seat to do the test when they feel the time is getting close. She is getting her hearing test on Monday. She got to meet Miss Michelle today, who can't wait to have her over for play dates.
Tuesday: Maddie is getting introduced to the bottle again. She has been on full feeds on a continuous flow for a couple of days now. They will start to compress her feeding time so her body will start knowing day feedings and night feeding. They will start with 23 hours of continuous flow with one hour off. Then 22 hours with 2 off, etc. She needs to get to the point where she is only on continuous feeds at night. Then we can do the car seat test, and hopefully home is the next step after that.
Thursday: Maddie is 7 pounds 2 ounces! Still no plans for a homecoming.
Saturday: Madelynn did really well on her swallow study. They are encouraged by what they see. They have reduced the amount of thickener in her formula. Her feeds are over a two hour period. We need to get her to a half hour. I brought in her car seat to do the test when they feel the time is getting close. She is getting her hearing test on Monday. She got to meet Miss Michelle today, who can't wait to have her over for play dates.
February 7, 2010
February 3, 2010
Week Twenty
Wednesday: Madelynn is breathing on her own! She no longer has a nasal canula. She will be tank free when she comes home. It is a very exciting day.
Friday: Maddie is back on getting whisps of air. The medical team is hopeful she will come off the oxygen again. Never get too excited. Jeremy, Elly, and I took the gastronomy class today. It is less intimidating than the book made it out to be. It was wonderful to get some hands on experience, even though it was with pink Styrofoam pretending to be a baby belly. Maddie loves her aunt Elly. The medical staff have encouraged us to have her around more, so Elly can get used to her.
We had a phone conference with the Jordan School District developmental specialist, Jennifer, to go over our concerns with Maddie, and to develop a game plan for when she is discharged.
Saturday: I changed Madelynn's dressing for the first time today. I worry I am hurting her, but she is just uncomfortable and not in pain. It will take time getting used to it, and hopefully we will get better nurses than the one we had today to help us through.
Sunday: Maddie should be up to full feeds by mid-week. She will then need to pass her car seat test, and we have to pass our gastronomy tube test. She is getting whiffs of oxygen. Hopefully she will come off. She is now 6 pounds 14 ounces.
Friday: Maddie is back on getting whisps of air. The medical team is hopeful she will come off the oxygen again. Never get too excited. Jeremy, Elly, and I took the gastronomy class today. It is less intimidating than the book made it out to be. It was wonderful to get some hands on experience, even though it was with pink Styrofoam pretending to be a baby belly. Maddie loves her aunt Elly. The medical staff have encouraged us to have her around more, so Elly can get used to her.
We had a phone conference with the Jordan School District developmental specialist, Jennifer, to go over our concerns with Maddie, and to develop a game plan for when she is discharged.
Saturday: I changed Madelynn's dressing for the first time today. I worry I am hurting her, but she is just uncomfortable and not in pain. It will take time getting used to it, and hopefully we will get better nurses than the one we had today to help us through.
Sunday: Maddie should be up to full feeds by mid-week. She will then need to pass her car seat test, and we have to pass our gastronomy tube test. She is getting whiffs of oxygen. Hopefully she will come off. She is now 6 pounds 14 ounces.
February 2, 2010
Midnight Phone Call
Last night we were woken up by the surgeons telling us Maddie's incision by her belly button was not closed properly. They have to go back in this morning at eight to close it up. She has fatty tissue coming out of the cut. The surgery shouldn't take very long, and we will get phone calls when it is finished.
Jeremy decided to leave work, and head to the hospital to stay with Maddie. She did not go into surgery until 3:30. In the interim she was given double the pain medication to help keep her comfortable.
Jeremy said it looked like her stomach muscle was popping out, but the doctor said it was fatty tissue. The suture had come out during the night from incision where the camera had gone in.
She came out of the surgery like a champ, and has been sleeping ever since.
Jeremy decided to leave work, and head to the hospital to stay with Maddie. She did not go into surgery until 3:30. In the interim she was given double the pain medication to help keep her comfortable.
Jeremy said it looked like her stomach muscle was popping out, but the doctor said it was fatty tissue. The suture had come out during the night from incision where the camera had gone in.
She came out of the surgery like a champ, and has been sleeping ever since.
February 1, 2010
Surgery Day
Madelynn had two procedures done today. She had her gastronomy tube placed, and she had two hernias repaired.
The surgeries went as well as could be expected. It is still a shock to see a tube or "button" protruding from your child's abdomen. You could tell she was extremely uncomfortable and in a lot a pain. The anesthesia wore off sooner than expected. She was crying big crocodile tears while we were waiting for the doctor to write the orders for the pain medication.
Her MRI came back, and showed a normal, healthy brain. They did say however it is just an MRI and there may be developmental issues down the road.
We took one picture of Maddie after the surgery to show where and what a gastronomy tube is. The tape is to hold the button in place while the scar tissue develops around the area to hold it in.
The surgeries went as well as could be expected. It is still a shock to see a tube or "button" protruding from your child's abdomen. You could tell she was extremely uncomfortable and in a lot a pain. The anesthesia wore off sooner than expected. She was crying big crocodile tears while we were waiting for the doctor to write the orders for the pain medication.
Her MRI came back, and showed a normal, healthy brain. They did say however it is just an MRI and there may be developmental issues down the road.
We took one picture of Maddie after the surgery to show where and what a gastronomy tube is. The tape is to hold the button in place while the scar tissue develops around the area to hold it in.
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